Charity Profile
Rare Disease Foundation
Registered As: BC Rare Disease Foundation
BN:  819326224RR0001
 
Add to My GivingPage
Add to My Favourites
Overview Details and Contact Info

Mission Statement

Our goal is to change the lives of children and families affected by rare and undiagnosed diseases through social support, advocacy and treatment-focused research. We are a dedicated team of physicians, researchers and parents who know firsthand the difficulties of raising a child with a rare disease.

Description

We are a collaboration between parents, caregivers, clinicians, and research scientists. We want to transform the world of rare disease care to meet the needs of patients and their families. Our focus is the introduction of a new model of care that fosters innovative research.

Health care agencies don't fund research and research agencies don't fund health care. This creates a problem when it comes to securing funding for work that can provide immediate benefits in treatment options. The Rare Disease Foundation fills the gap by providing funding to inspired clinicians and scientists for their patient-focused projects. Our goal is to support research that can directly impact the care and quality of life of a child with a rare disease. Grant requests are simplified to reduce red tape, vetted by both scientific and parent advisory panels, and funding decisions are made within 30 days of grant application to rapidly advance care solutions.


Address

4500 Oak Street, Room C234
VANCOUVER, BC
CA
V6H3N1

Contact Information

Contact Name:Dawn Patel
Email:dawnpatel@rarediseasefoundation.org
Website:http://www.rarediseasefoundation.org


 
Add to My GivingPage
Add to My Favourites
WAYS TO GIVE
Make a Donation
GivingPages
Charity Gift Cards
Donate Securities
Charity Gift Cards

Any denomination, to anyone - a truly flexible and unique gift!
» More about Gift Cards