"To build awareness and drive education, research, support, care and advocacy, to help find a cure while always continuing to improve the quality of life for all individuals with spina bifida and/or hydrocephalus."
Spina Bifida and Hydrocephalus Association of Ontario (SB&H) is a registered charity governed by a volunteer Board of Directors. SB&H provides direct support to individuals with spina bifida and/or hydrocephalus and their families, conducts awareness and education programs, supports and promotes research, and works to ensure fair treatment and social justice for people with disabilities.
Our vision is to facilitate the reduction and ultimate eradication of these conditions, and build a society that is sensitive, supportive and responsive to the needs of those living with or affected by these disabilities.
SB&H is not government funded and generates 100% of its revenue through fundraising initiatives. A small complement of employees and a multitude of community volunteers carry out the Association's work. We are the only organization in Ontario addressing the needs of individuals and families affected by these serious, complex conditions.
555 Richmond Street West
P.O. Box. 103, Suite #1006
Contact Name:Ken Koffman, Director of Development