Mission of the Foundation André-Delambre
The mission of the Fondation André-Delambre is threefold. First, the foundation works with organizations involved in the fight against ALS to teach people suffering from the disease, as well as their families, about the few services offered by the public sector and to help provide access to these services as quickly as possible. Second, the foundation promotes research: in order to ensure that its activities are both relevant and effective, and that research funds are well-allocated, the foundation has established a scientific committee for information and advisory purposes. Third, the foundation has set up a lobby group to interact with the media and public authorities when reports are presented or treatments suggested.
Improving awareness of the disease is the most effective way of encouraging governments to provide more services and more funding for scientists who are looking for – and will eventually find – a cure.
Scientific history has proven that, sooner or later, every disease can be cured. It is simply a matter of time, money and determination.
About FONDATION ANDRÉ-DELAMBRE
Amyotrophic lateral sclerosis (ALS) is a sudden-onset, incurable neurodegenerative disease. Although it affects fewer people than muscular dystrophy, multiple sclerosis or cystic fibrosis, it kills more people than those three diseases combined. Since it is neither well-known nor well-documented, it is almost invariably fatal. Most people with ALS die within three to five years from the onset of symptoms. The person’s quality of life starts to deteriorate within months of diagnosis. Progressive paralysis of all voluntary muscle tissue prevents the person from walking, speaking, eating and, eventually, breathing.
Although ALS is both more devastating and more deadly than many other neurodegenerative diseases, due to a lack of research funding and existing knowledge, there is currently no specific treatment for it.