1st Annual Kamloops Scleroderma Walk in the Park, Saturday June 6, 2020

SCLERODERMA ASSOCIATION OF B.C.

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100% OF THE FUNDS RAISED WILL GO TO RESEARCH IN CANADA

The Blue Buttons above are for individuals to ATTEND and FUNDRAISE.

For others in your family/group who want to ATTEND (without fundraising), come back to this page and Register to ATTEND the Event HERE!

 

If you want to ATTEND (without fundraising) Register to ATTEND the Event HERE!

 

If you are here to DONATE ONLY select the Donate Now button at the top of the page.

 

If you want to ATTEND and FUNDRAISE

     You will need a CanadaHelps account to be a Fundraiser.

     Use your Canada Helps password or create a new CanadaHelps account.

You may want to print the appropriate steps for your registration.

Keep reading for the steps to register as a Team Captain, Team Member or Individual!

 

 

You can Join as an Individual, Create a Team or Join a Team.

 

Join as an Individual

Select the Join as an Individual button.

Page 1

You will be asked for your email address.

This will either lead you to your CanadaHelps account, where you will be asked for your password, or ask you to create a CanadaHelps account

Then complete the information requested to be a fundraiser.

Page 2

This is where you register (purchase a Ticket) to attend

Complete the information as a Purchaser

Select the “Ticket/Registration” that you are purchasing.

Answer the questions that go with the “Ticket/Registration” T-shirt size, etc.

Make payment

Page 3

Now you create your Personal fundraising page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, use your own name so that others can donate to you.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your fundraising page are set, you can copy the URL for your fundraising page to send to your family and friends.

 

Create a Team

Select the Create a Team button.

You will become a Team Captain.

Page 1

You will be asked for your email address.

This will either lead you to your CanadaHelps account, where you will be asked for your password, or ask you to create a CanadaHelps account

Then complete the information requested to be a fundraiser.

Page 2

This is where you register (purchase a Ticket) to attend

Complete the information as a Purchaser

Select the “Ticket/Registration” that you are purchasing.

Answer the questions that go with the “Ticket/Registration” T-shirt size, etc.

Make Payment

Page 3

Now you create your Personal fundraising page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, use your own name so that others can donate to you.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your fundraising page are set, you can copy the URL for your fundraising page to send to your family and friends.

Page 4

Now you create your Team page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, create a name that is unique to you and why you have a team.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your Team page are set, you can copy the URL for your Team page to send to your family and friends to join your team. You can also copy the URL for your fundraising page to send to your family and friends to start raising money.

 

To Join a Team:

Select Participants, below the blue buttons.

The Names of all the Participants will be displayed along with the Team that they are a part of.

Select the Team you want to join.

The Team Page will open; scroll down to the Members area.

Select the Join this Team button.

Now, follow the instructions for Join as an Individual.

About the Kamloops Walk

The 1st Annual Kamloops Scleroderma Walk in the Park for Research will be held on Saturday June 6th, 2020 at McDonald Park. 501 McDonald Ave, Kamloops BC Registration begins at 9:30, the walk starts at 10:30.

The Kamloops Walk is one of the events held in June (Scleroderma Awareness Month) across British Columbia to promote greater awareness of this terrible disease and raise funds for vital research. The Scleroderma Association of B.C. (SABC) supports these events and asks for your help to achieve both goals this year.

 

Why organize a Walk?

Three friends living with scleroderma, Jen Beckett, Vicki Gray and Darla Martin had the idea for the first Kamloops Scleroderma Walk after realizing the need for community awareness around a disease that is often misunderstood leaving people socially isolated and painfully afflicted. Jen, Vicki and Darla’s desires are not only to raise money for research for a disease that has no cure an importantly to create a compassionate community reducing the stigma associated with the disease.

 

“It is our spirit and passion that define us, not our disease. “  Jen

 

What is scleroderma?

You may not have heard of scleroderma. It is a rare chronic autoimmune disease that affects about 2,300 people here in B.C. That is about 1 in 2,500 people; you probably have a connection that you don’t know about. The name scleroderma is derived from the Greek “skleros” meaning hard and “dérma” meaning skin; simply “hard skin”.

Unfortunately, it is not that simple. Scleroderma presents itself differently for everyone and takes a unique course during the development of the disease. The “hard skin” may be visible when the skin is affected or invisible when only internal organs are involved; or a combination of both. Each patient lives with their individual challenges everyday. There is no known cause, it is extremely difficult to diagnose and no cure. To learn more about scleroderma go our website at www.sclerodermabc.ca

 

Scleroderma Research

In British Columbia there is little or no government research funding for orphan diseases, such as scleroderma. Financially supporting research is primarily patient driven and becomes a success from involvement by people that care and are willing to make a commitment. 100% if every donation during our June events goes to research. Over the last eight years, SABC has provided over $360,000 in funding to research through the Scleroderma Ride for Research and Walks in Victoria, Valemount and Smithers.

100% of funds raised support scleroderma research studies here in B.C. and across Canada. To name just a few of the current and exciting research projects underway in 2020, there are studies to: identify too high or too low genome sequences within cells leading to effective treatment of skin and/or lung damage in patients (Vancouver),  develop stem cell transplant guidelines leading to a pathway for assessing transplant candidates (Winnipeg), investigate the large spectrum of scleroderma-related disorders like lung disease, Sjögren's syndrome and skin ulcers (Toronto), detect and identify the potential role of serum autoantibodies leading to better diagnosis and development of new therapies for scleroderma (Montreal), investigate and develop self-management, hand function and psychosocial rehabilitative interventions leading to online programs and toolkits to help patients cope with important challenges, improving their quality of everyday life (Montreal) and studies to identify a core set of items to classify scleroderma renal crisis (Halifax).