Linda Barnes. (Oma’s Team)
scleroderma Association of BC's fundraiser supporting SCLERODERMA ASSOCIATION OF B.C. in 2nd Annual Victoria Scleroderma Walk in the Park, Sunday June 23, 2019
Six years ago I was diagnosed with Systemic Sclerosis or "Scleroderma" as its also called. I was told that there is no known cause and no cure, and only poorly understood treatment for some of the symptoms. Since that time, I have worked hard to maintain the best life possible, while dealing with pain, medications, and life changes relating to disability. Last year, I worked on setting up a Walk in Victoria to raise funds for research.
On June 23rd, we walk again.....for the second year, I’m raising funds to support research at St Paul’s Hisptal Vancouver in order to find a cure for Scleroderma. This awful disease has stolen so much from me, and I’m fighting back to raise awareness of this rare and debilitating autoimmune disease. More funds for research is the only way that we can see forward for a cure. I intend to stay as healthy and active as possible for my grandkids and family, while we find the answers.