"To build awareness and drive education, support, care, research, and advocacy to improve the quality of life of individuals with spina bifida and/or hydrocephalus."
About Our Charity
Spina Bifida and Hydrocephalus Association of Ontario (SB&H) is a registered charity governed by a volunteer Board of Directors. SB&H provides direct support to individuals with spina bifida and/or hydrocephalus and their families, conducts awareness and education programs, supports and promotes research, and works to ensure fair treatment and social justice for people with disabilities.
Our vision is that all Ontarians with spina bifida and/or hydrocephalus have access to the services, supports and resources needed to achieve their goals and dreams in a society that is sensitive, supportive and responsive to their needs.
SB&H is not government or United Way funded and generates 100% of its revenue through fundraising initiatives. A small complement of employees and a multitude of community volunteers carry out the Association's work. We are the only organization in Ontario addressing the needs of individuals and families affected by these serious, complex neurological conditions.