Hydrocephalus Canada (formerly Spina Bifida & Hydrocephalus Association of Ontario)

Registered Name: Hydrocephalus Canada

Business Number: 107999310RR0001

Our Mission

To support and passionately advocate for Canadians living with Hydrocephalus and associated neurological conditions, with the unrelenting goal of finding a cure.

HYDROCEPHALUS CANADA is a registered charity, governed by a volunteer board of directors. We provide programs, services and direct support to children, youth, adults & families affected by the neurological condition of hydrocephalus across Canada. We also serve people living with spina bifida in the province of Ontario.

Hydrocephalus Canada incorporates the Spina Bifida and Hydrocephalus Association of Ontario (SB&H). As Hydrocephalus Canada, the new association continues to offer the same valued programs and services that the Ontario community relies upon. But more than that, we are expanding our mandate to include the growing number of people across Canada living with hydrocephalus and normal pressure hydrocephalus (NPH).

This national expansion will strengthen the growing community of people living with hydrocephalus and enable us to better support advances in treatment for hydrocephalus and related neurological conditions such as spina bifida, the sharing of education and knowledge, and standards of care. 

The new association will build on the legacy of the Spina Bifida & Hydrocephalus Association of Ontario. We will use our experience, knowledge and drive to outreach, offer useful information and support for members, and share relevant research and treatment news across medical communities, academia, associations, and industry partners, provincially, nationally and globally.

Hydrocephalus Canada is not government or United Way funded and generates 100% of its revenue through fundraising initiatives. A small complement of employees and a multitude of community volunteers carry out the organization's work. 

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