Team JADACO (SPG50)

A few weeks ago I received an email from a Father of a child affected by a terrible debilitating disease, I had no idea who he was let alone why he was reaching out to me for help. After reading his email and watching his story I knew that I needed to help. His beautiful 2 year old son is affected by a neurodegenerative disease that will leave him paralyzed and severely developmentally delayed, his father Terry is doing everything is his power to create a treatment for his son. Due to Covid all of his sons (Michael) therapies have been put on hold, the physical therapy that he requires to keep his muscle going have been paused and so Terry decided that he was going to put a pool in to help Michael continue his physical therapy in a safe environment and hopefully keep him going until he could resume his therapies. Terry is fighting hard for his boy, a father that refused to take no as an answer and decided instead to change the course of his sons future and develop a non existent Gene Therapy to treat his son, although the price tag was large ($3MM) the idea of his son withering away before his eyes was too devastating to accept. His story is so inspirational, as a father of 2 I could only imagine the pain and heartache such a diagnosis would cause, no child deserves such a fate and so i have decided to join his Journey to Cure Michael and help his raise the remaining funds he needs to see his dream come true and give Michael the life he deserves

Please watch the video below or from this link: https://vimeo.com/430762205

Global News Story Link: https://globalnews.ca/news/7082128/toronto-boy-ultra-rare-disease-covid-19/