CDKL5 Canada Walk for a Cure
CDKL5 Canada is a registered charitable organization dedicated to finding a cure for CDKL5 Deficiency Disorder. CDKL5 is a rare x-linked neurodevelopmental disorder. Most individuals with this disorder are affected with early-onset difficult to control seizures. They have global delays, hyptonia, breathing difficulties, vision difficulties, sleep impairments, and many cannot walk or talk. CDKL5 Canada is working hard to find treatments to improve the quality of life for these children, provide hope and support to families, and to ultimately find a cure. By participating in this walk, you are creating awareness for this devastating disease as well as raising much needed funding for research. If you are not able to participate in the walk, donations are appreciated.