Rare Trait Hope Society
Dénomination enregistrée : Rare Trait Hope Society
Numéro d'entreprise : 711506071RR0001
Cet organisme est désigné par l'Agence du revenu du Canada (ARC) comme organisme de bienfaisance enregistré. Ils se conforment aux exigences de l'ARC et ont reçu un numéro d'enregistrement d'organisme de bienfaisance.
Rare Trait Hope Society was created to fund a treatment for a rare, fatal, neuro-degenerative disease, Aspartylglucosaminuria (AGU).
AGU is a childhood disease that gradually steals a child's cognition, speech and mobility. AGU children may only survive into young adulthood. After many years of pre-clinical research, a gene therapy has been developed. It is ready to be given to affected children, but first we need to raise the remaining funds necessary to produce the replacement gene and conduct the clinical trial. This milestone is achievable within the next year!