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Rare Trait Hope Society

Dénomination enregistrée : Rare Trait Hope Society

Numéro d'entreprise : 711506071RR0001

Rare Trait Hope Society was created to fund a treatment for a rare, fatal, neuro-degenerative disease, Aspartylglucosaminuria (AGU).

Rare Trait Hope Society

À propos

AGU is a childhood disease that gradually steals a child's cognition, speech and mobility.  AGU children may only survive into young adulthood.  After many years of pre-clinical research, a gene therapy has been developed.  It is ready to be given to affected children, but first we need to raise the remaining funds necessary to produce the replacement gene and conduct the clinical trial.  This milestone is achievable within the next year!

ADRESSE DE L'ORGANISME ENREGISTRÉ

2768 W Broadway

Vancouver, BC, V6K 4P4

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