3rd Annual Victoria Scleroderma Walk in the Park, Sunday June 14, 2020

SCLERODERMA ASSOCIATION OF B.C.

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The Blue Buttons above are for individuals to participate and fundraise.  If there are others in your family/group, come back to this page and please select Event Registration HERE!

If you want to ATTEND and donate (without fundraising), please select Event Registration HERE!

If you are here to DONATE ONLY select the Donate Now button at the top of the page.

You will be able to donate to the Event, a Team or an Individual.

Participating in the Walk

Fundraise – attend – donate.

100% OF THE FUNDS RAISED WILL GO TO RESEARCH IN B.C.

 

 

 

If you want to FUNDRAISE

You will need a CanadaHelps account to be a Fundraiser.

You can use your Canada Helps password or create a new CanadaHelps account in the following steps.

You may want to print the appropriate steps for your registration.

 

You can Join as an Individual, Create a Team or Join a Team.

 

Join as an Individual

Select the Join as an Individual button.

Page 1

You will be asked for your email address.

This will either lead you to your CanadaHelps account, where you will be asked for your password, or ask you to create a CanadaHelps account

Then complete the information requested to be a fundraiser.

Page 2

This is where you register (purchase a Ticket) to attend

Complete the information as a Purchaser

Select the “Ticket/Registration” that you are purchasing.

Answer the questions that go with the “Ticket/Registration” T-shirt size, etc.

Make payment

Page 3

Now you create your Personal fundraising page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, use your own name so that others can donate to you.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your fundraising page are set, you can copy the URL for your fundraising page to send to your family and friends.

 

Create a Team

Select the Create a Team button.

You will become a Team Captain.

Page 1

You will be asked for your email address.

This will either lead you to your CanadaHelps account, where you will be asked for your password, or ask you to create a CanadaHelps account

Then complete the information requested to be a fundraiser.

Page 2

This is where you register (purchase a Ticket) to attend

Complete the information as a Purchaser

Select the “Ticket/Registration” that you are purchasing.

Answer the questions that go with the “Ticket/Registration” T-shirt size, etc.

Make Payment

Page 3

Now you create your Personal fundraising page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, use your own name so that others can donate to you.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your fundraising page are set, you can copy the URL for your fundraising page to send to your family and friends.

Page 4

Now you create your Team page.

There is a default page setup for you already, but you can modify any sections to make it your own.

You are asked for a Page Name, create a name that is unique to you and why you have a team.

You can change your fundraising goal.

You can change your fundraising story. The default provides some basic information that may give you some useful background.

You can change the Featured Image by uploading your own picture.

Once you and your Team page are set, you can copy the URL for your Team page to send to your family and friends to join your team. You can also copy the URL for your fundraising page to send to your family and friends to start raising money.

 

To Join a Team:

Select Participants, below the blue buttons.

The Names of all the Participants will be displayed along with the Team that they are a part of.

Select the Team you want to join.

The Team Page will open; scroll down to the Members area.

Select the Join this Team button.

Now, follow the instructions for Join as an Individual.

 

 

The 3rd Annual Victoria Scleroderma Walk in the Park for Research will be held on Sunday June 14th, 2020 at the West Shore Parks & Recreation Picnic Shelter. 1767 Island Hwy, Victoria BC Registration begins at 9:30, the walk starts at 10:30.

The Victoria Walk is one of the events held in June (Scleroderma Awareness Month) across British Columbia to promote greater awareness of this terrible disease and raise funds for vital research. The Scleroderma Association of B.C. (SABC) supports these events and asks for your help to achieve both goals this year.

 

Why organize a Walk?

The idea for the Victoria Scleroderma Walk came about after Linda Barnes, who has been supported by St. Paul’s Vancouver Scleroderma Clinic, attended ‘Ride for Research’ in Vancouver, in 2017. Linda decided that patients and their families on Vancouver Island could help spread awareness and fundraise for research. The idea of participating as a community in a healthy activity to raise awareness of this debilitating disease, was the catalyst for the first walk in 2018. Over the past two years 250 people have participated by walking, sponsoring a walker, donating services and volunteering. Over $22,000 has been raised and we hope to continue to grow this year.

 

What is scleroderma?

You may not have heard of scleroderma. It is a rare chronic autoimmune disease that affects about 2,300 people here in B.C. That is about 1 in 2,500 people; you probably have a connection that you don’t know about. The name scleroderma is derived from the Greek “skleros” meaning hard and “dérma” meaning skin; simply “hard skin”.

Unfortunately, it is not that simple. Scleroderma presents itself differently for everyone and takes a unique course during the development of the disease. The “hard skin” may be visible when the skin is affected or invisible when only internal organs are involved; or a combination of both. Each patient lives with their individual challenges everyday. There is no known cause, it is extremely difficult to diagnose and no cure. To learn more about scleroderma go our website at www.sclerodermabc.ca

Scleroderma research.

In British Columbia there is little or no government research funding for orphan diseases, such as scleroderma. Financially supporting research is primarily patient driven and becomes a success from involvement by people that care and are willing to make a commitment. 100% if every donation during our June events goes to research. Over the last eight years, SABC has provided over $360,000 in funding to research through the Scleroderma Ride for Research and Walks in Victoria, Valemount and Smithers.

SABC supports research in B.C. through the St. Paul’s Foundation, St. Paul's Hospital Scleroderma Clinic and local researchers. The Scleroderma Association of BC Research Project is a proof-of-concept study, to discover miRNA sequences and their differential expression, that is being conducted here in B.C. The team is led by SABC President Rosanne Queen, SABC past President Bob Buzza, Drs. James Dunne and Kevin Keen. The project started in 2017 with the collection of blood and skin tissue samples from patients and friends; we literally “have skin in the game”. The research is continuing with the next steps investigating specific biomarkers and therapies for treatment.

Support of other research and applications to improve the quality of life and eventually a cure is being made to The Scleroderma Patient-centered Intervention Network, the Canadian Scleroderma Research Group and The Scleroderma Research Chair of the University of Montreal.