MPS IVA Research Fund

October 2020 Update:

We are actively pursuing research partnership opportunities and have some exciting projects on the horizon.  Join us as we are now expanding our fundraising efforts and creating a long-term dedicated Morquio Research Fund. Thank you for being part of our journey to find the breakthrough(s) that Simon and everyone living with Morquio deserves!

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June 30 Update! It’s Becs’ 39th birthday and there’s no better gift than an anonymous donation of $3000 to push our kickoff fundraiser we’ll over its goal and we’re now close to $17,000! Thank you all for your incredible outpouring of support and can’t wait to get to work making the most of this momentum. 

UPDATE! We have been blown away at the quick and generous outpouring of support for this research fund we're starting, thank you to all our amazing friends and family across the globe who have stepped up at this particularly challenging time to support Simon and everyone living with MPS IVA!  To keep up with the momentum we are updating our modest $1,000 goal to $15,000 - let's see if we can reach it together and open the doors to even more possibility after the pandemic!

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On Feb 28th, 2019 our lives were forever changed when our (then) 2 year old son was diagnosed with a very rare, progressive genetic disease called Morquio Syndrome, or MPS IVA. The disease, an uncommon form of dwarfism, mainly impacts skeletal growth and also causes progressive decline in the eyes, ears and respiratory system. Although we are incredibly thankful that we have access to weekly enzyme replacement therapy to slow the progression of the disease, we know, he and everyone living with MPS IVA, deserves a cure.  Working with the Isaac Foundation we know that every penny raised will go towards promising and innovative research to help find a cure and ensure Simon, and everyone living with Morquio, has a long and healthy life! 

Before the global covid-19 pandemic, we had big plans to help launch a long-term, targeted MPS IVA Research Fund to help find a cure but instead we've been preoccupied with keeping our family safe and juggling work and three kiddos! 

SO, we're starting small - something is better than nothing!  Help us celebrate Simon and Isabel's 4th Birthday by helping us raise $1000 to kickoff our long-term fundraising efforts.  Thank you!!! (UPDATED: now aiming for a $15,000 goal!)

110 supporteurs voir tout

21 293 $ amassés sur 30 000 $

2 mois, 1 semaine restants
La collecte de fonds se termine 30 juin 2021
Date de fin Nom du donateur Nom de l'organisme de bienfaisance Montant
22 mars 2021 21:52 Sophie Broughton THE ISAAC FOUNDATION 35,00 $
22 décembre 2020 22:46 Anonyme THE ISAAC FOUNDATION 2 500,00 $
I could not think of a better way to share some joy and love this Christmas. Love to the Hoskins, Tricia Abbott
15 décembre 2020 12:39 Pat Pollard THE ISAAC FOUNDATION 200,00 $
Thinking of you all. Lots of love, Pebes and Ted
9 décembre 2020 01:19 Trevor Hoskins THE ISAAC FOUNDATION 1 000,00 $
A Christmas donation from Grandad! xoxo
2 décembre 2020 00:19 Alicia Rippington THE ISAAC FOUNDATION 100,00 $
Thinking of you all! The Rippingtons
21 novembre 2020 15:13 Dorothy Fitz-Gerald THE ISAAC FOUNDATION 500,00 $
This donation is made to help youngsters like Simon Hoskins.
5 novembre 2020 16:01 Peg Serena THE ISAAC FOUNDATION 50,00 $
Love that Simon! xox
22 octobre 2020 13:48 Jill Milne THE ISAAC FOUNDATION 500,00 $
With all our very best to an amazing family!! Jill and Gord
8 octobre 2020 21:32 Becs Hoskins THE ISAAC FOUNDATION 500,00 $
Another contribution from Grandad and Susan! xoxo
3 octobre 2020 14:48 David & Caroline Barry THE ISAAC FOUNDATION 500,00 $
As always, wishing you all the best
5 août 2020 11:18 Alex Holmes THE ISAAC FOUNDATION 200,00 $
Hi Trev and Becs - Happy we can support your initiative and I’m not too late!! Love, Alex & Karen
14 juillet 2020 17:47 Janet Newbury THE ISAAC FOUNDATION 50,00 $
with love
12 juillet 2020 12:26 Anonyme THE ISAAC FOUNDATION 50,00 $
10 juillet 2020 11:02 Justine Comeau THE ISAAC FOUNDATION 100,00 $
6 juillet 2020 11:18 Tricia Abbott THE ISAAC FOUNDATION 500,00 $
Praying for a cure soon!!! Love Tricia
3 juillet 2020 00:13 Anonyme THE ISAAC FOUNDATION 100,00 $
Eva sends Simon a big goosey room hug ??
1 juillet 2020 00:29 Sibylla Helms THE ISAAC FOUNDATION 100,00 $
With so much love and hope. Go for the stars!
1 juillet 2020 00:07 Paige Quinn THE ISAAC FOUNDATION 39,00 $
39 for your 39th! Xoxo
30 juin 2020 23:29 Dawn Carr THE ISAAC FOUNDATION 60,00 $
Happy birthday Becs and beautiful family!
30 juin 2020 22:22 Anon Anon THE ISAAC FOUNDATION 25,00 $
Strength and peace Becz
30 juin 2020 22:22 Anonyme THE ISAAC FOUNDATION 25,00 $
30 juin 2020 21:18 Mathew Geddes THE ISAAC FOUNDATION 50,00 $
Happy birthday!
30 juin 2020 19:30 Keltie Stewart THE ISAAC FOUNDATION 40,00 $
Happy Birthday Becca! Thinking of you and your family!
30 juin 2020 18:26 Carinna Kenigsberg THE ISAAC FOUNDATION 25,00 $
Small appreciation for an amazing family who gives a lot to their community and one another.
30 juin 2020 17:22 Tonya Saidwilson THE ISAAC FOUNDATION 50,00 $
30 juin 2020 16:40 Anonyme THE ISAAC FOUNDATION 50,00 $
Becca, My heart is with you in this trying time. Simon is lucky to have such a strong mama to get through this with him. Much love, Brooke
16 juin 2020 15:29 Jeffrey Mireau THE ISAAC FOUNDATION 300,00 $
With love, from Jeff
9 juin 2020 23:41 Melina Warren THE ISAAC FOUNDATION 200,00 $
8 juin 2020 13:25 Paula Hopwood THE ISAAC FOUNDATION 200,00 $
6 juin 2020 14:56 Hanne Banister THE ISAAC FOUNDATION 200,00 $
Dear Becs and Trevor, The pictures of the children are adorable. Such a great family. Fingers crossed for a cure for Simon. With love Hanne
4 juin 2020 02:35 Anonyme THE ISAAC FOUNDATION 250,00 $
3 juin 2020 22:07 Anonyme THE ISAAC FOUNDATION 40,00 $
2 juin 2020 12:38 Anonyme THE ISAAC FOUNDATION 100,00 $
31 mai 2020 23:56 Judy Gorkoff THE ISAAC FOUNDATION 50,00 $
What a wonderful idea to develop 'The Isaac Foundation'. Praying that the research can prove successful for this rare condition.
31 mai 2020 12:32 Anonyme THE ISAAC FOUNDATION 75,00 $
Hope this helps the drive to assist all the children like Simon and their families. Liz Hawes
29 mai 2020 13:59 William Cumming THE ISAAC FOUNDATION 400,00 $
Love you Simon and Isabel. Love Grandad
28 mai 2020 17:06 Racquel Antalan THE ISAAC FOUNDATION 50,00 $
Hi becs, Belated happy birthday to Simon and Isabel. I donated $50 as a gift for them. And I hope this will help somehow. I miss you all ??
27 mai 2020 11:37 Rebecca Alleyne THE ISAAC FOUNDATION 100,00 $
Happy Belated!! What a great way to celebrate a special kid! -Chris and Becky
26 mai 2020 19:35 Jennifer Grant THE ISAAC FOUNDATION 40,00 $
Thinking of you all! Big hug, Becs.
26 mai 2020 17:53 Meghan Hawes THE ISAAC FOUNDATION 100,00 $
Happy Birthday Isabelle & Simon! Looking forward to lots more backyard, beach and Mexican party hangs! xoxo Meg, Mark, Max & Merlin
26 mai 2020 16:02 Kelly Newhook THE ISAAC FOUNDATION 50,00 $
Love all you Hoskin's!!! Hope this little bit helps!!
25 mai 2020 17:25 Tove Olafson THE ISAAC FOUNDATION 40,00 $
25 mai 2020 11:37 Sara Eljarbo THE ISAAC FOUNDATION 25,00 $
Happy birthday cousins! Love, Emma & Tessa
23 mai 2020 20:27 Carol Barber THE ISAAC FOUNDATION 100,00 $
Lets find a cure. Carol Barber
23 mai 2020 09:43 Judith Pentinga THE ISAAC FOUNDATION 20,00 $
I hope this will shed light on Simon’s condition! I’m Kathy’s sister - she keeps me updated
23 mai 2020 01:32 Jodi Klatt THE ISAAC FOUNDATION 50,00 $
Happy birthday!!! Xo
23 mai 2020 00:12 Elyse Curley THE ISAAC FOUNDATION 50,00 $
Happy bday to the twins! Miss you all and can’t wait for a fun beach hang when we can all meet again. Love, elyse and brian
22 mai 2020 21:11 Kluane Buser-Rivet THE ISAAC FOUNDATION 30,00 $
Happy birthday to the twins! Hope all are well at the Hoskins residence - I miss seeing you all on the regular! Sending a warm hug your way!
22 mai 2020 20:55 Jennifer Garrett THE ISAAC FOUNDATION 40,00 $
Much love to all of you.
22 mai 2020 20:21 Bill McCormick THE ISAAC FOUNDATION 50,00 $
Hope you guys are managing during these crazy times and that you reach your goal of $15,000 Love and hugs to everyone. Billa
22 mai 2020 18:24 Scott Jackson THE ISAAC FOUNDATION 100,00 $
Happy birthday you rascals! Big love from A, T, M, and S.
22 mai 2020 17:20 Jaime Hilbert THE ISAAC FOUNDATION 30,00 $
Happy big 4 to your amazing twins :-) They we’re so gifted to get you as a mom!
22 mai 2020 17:18 Netty Silber THE ISAAC FOUNDATION 50,00 $
Happy Belated Birthday to Simon and a Isabel! Best always, Netty Silber
22 mai 2020 17:09 Heather Cumming THE ISAAC FOUNDATION 50,00 $
Happy 4th Birthday!!! xo, Pippi, Theo, & Niamh
22 mai 2020 17:01 Morgan Tidd THE ISAAC FOUNDATION 100,00 $
Happy birthday little muffins!
22 mai 2020 16:29 Andrew Cumming THE ISAAC FOUNDATION 1 000,00 $
great work on the big raise. Great cause. Love, Andy, Hillary, Owen, Holly and AJ
22 mai 2020 10:32 Paula Crocker THE ISAAC FOUNDATION 100,00 $
22 mai 2020 00:24 Krysia Tuttle THE ISAAC FOUNDATION 100,00 $
Happy birthday Simon and Isabel! Hello to Becs Trev and Spencer too! Hope you all are well! Big hugs, Tuttle McKinnons
21 mai 2020 21:57 Andrew Cumming THE ISAAC FOUNDATION 1 000,00 $
21 mai 2020 19:58 Louise Eljarbo THE ISAAC FOUNDATION 100,00 $
Happy 4th birthday Simon and Isabel love Aunty Louise & Uncle Ivan
21 mai 2020 18:42 Cindy Oram THE ISAAC FOUNDATION 100,00 $
21 mai 2020 18:03 Sibylle Artz THE ISAAC FOUNDATION 200,00 $
Happy Birthday to Simon and Isabel and my Best to the whole Family, Sibylle
21 mai 2020 15:49 Jennifer Cumming THE ISAAC FOUNDATION 500,00 $
Sending love and hugs Uncle Tom and Auntie Jen
21 mai 2020 15:22 Robert Cumming THE ISAAC FOUNDATION 100,00 $
Happy birthday to the twins. Hope we get a chance to meet them soon. Best to all Anne and Bob
21 mai 2020 08:45 Donna Meyer THE ISAAC FOUNDATION 50,00 $
Research is so crucial moving forward- I applaud your efforts and wish your entire family well.
20 mai 2020 22:56 Alexis Bates-Smith THE ISAAC FOUNDATION 200,00 $
20 mai 2020 22:23 Pebes and Ted Pollard THE ISAAC FOUNDATION 100,00 $
Dear Trev and Becs, Our hopes and prayers are with Simon and we hope that every little bit of funds raised helps out. Take care. Love Peb
20 mai 2020 22:11 Dorothea North THE ISAAC FOUNDATION 200,00 $
Love Simon
20 mai 2020 20:43 Virginia Tucker THE ISAAC FOUNDATION 200,00 $
HI Simon and Isabel..such fun seeing you yesterday at the beach with your Nana Marie after an exciting boat ride to celebrate your 4th ox
20 mai 2020 18:13 Katherine White THE ISAAC FOUNDATION 75,00 $
20 mai 2020 17:53 Bernice Deering THE ISAAC FOUNDATION 100,00 $
Any research that can be accomplished will be amazing. Hoping this fund raiser is a success for Simon and others with this rare disease.
20 mai 2020 17:50 Lynda Rozon THE ISAAC FOUNDATION 800,00 $
Love you all. xoxo
20 mai 2020 17:37 Dorothy Fitz-Gerald THE ISAAC FOUNDATION 100,00 $
20 mai 2020 17:18 Nell Rutledge-Leverenz THE ISAAC FOUNDATION 300,00 $
Happy birthday, Si & Is. We love you all to the moon and back and on to the stars. Here's to scientific breakthroughs and big adventures.
20 mai 2020 16:07 Elizabeth Johnson THE ISAAC FOUNDATION 150,00 $
Happy Birthday Simon and Isabel!!
20 mai 2020 15:31 Sandy Evans THE ISAAC FOUNDATION 100,00 $
as a good friend of Marie's I would love to help . Sandy Evans
20 mai 2020 15:18 Anonyme THE ISAAC FOUNDATION 200,00 $
Happy to contribute to this cause. Love to the Hoskins, Marnee and Graeme
20 mai 2020 13:59 Katherine Harris THE ISAAC FOUNDATION 50,00 $
I f I can help in this small way I would be honoured to do so!
20 mai 2020 13:25 Lynne Henderson THE ISAAC FOUNDATION 200,00 $
Happy birthday little ones. Hope you have a great day.
20 mai 2020 12:39 Adrienne Watt THE ISAAC FOUNDATION 100,00 $
20 mai 2020 11:22 Geraldine Van Gyn THE ISAAC FOUNDATION 500,00 $
Happy Birthday Simon and Isabel!
20 mai 2020 10:49 Anonyme THE ISAAC FOUNDATION 100,00 $
Happy Birthday, sweet Isabel and Simon! We love you! What an amazing set of parents you have (and a wonderful big brother too!).
20 mai 2020 10:43 Suzanne Cumming THE ISAAC FOUNDATION 200,00 $
Love you guys
20 mai 2020 10:34 Edward May THE ISAAC FOUNDATION 50,00 $
4 Rocks!!!!!! Rock on Isabel and Simon! Lots of love xo Sloan and Rowan
20 mai 2020 10:28 Jennifer White THE ISAAC FOUNDATION 100,00 $
Dear Becs & Trev. As a dear friend of Marie's, I feel like I have come to know your kids through her and it is my pleasure to support this!
20 mai 2020 10:10 Henrietta Gregory THE ISAAC FOUNDATION 100,00 $
Happy Birthday to my fav 4 year olds!!! Love ?? The Gregory's
20 mai 2020 01:32 Fiona May THE ISAAC FOUNDATION 50,00 $
Happy Birthday Simon and Isabel!!
20 mai 2020 01:25 Maia Green THE ISAAC FOUNDATION 100,00 $
Sending so much love. What a strong and amazing kiddo!
20 mai 2020 00:57 Chad Hoskins THE ISAAC FOUNDATION 100,00 $
Happy Birthday Simon and Isabel! Love from Ben, Zach and Chad
20 mai 2020 00:54 Marie Hoskins THE ISAAC FOUNDATION 1 000,00 $
Happy Birthday my little ones!
20 mai 2020 00:45 Sarah McKerlich THE ISAAC FOUNDATION 20,00 $
20 mai 2020 00:12 David Segal THE ISAAC FOUNDATION 30,00 $
Happy birthday to your two beauties!
19 mai 2020 23:46 Anna Peacock THE ISAAC FOUNDATION 100,00 $
19 mai 2020 21:11 Corinne Tweter THE ISAAC FOUNDATION 100,00 $
19 mai 2020 20:57 Joanna Gray THE ISAAC FOUNDATION 100,00 $
19 mai 2020 20:28 Stephanie Sturgis THE ISAAC FOUNDATION 100,00 $
Happy birthday to Simon and Isabel!
19 mai 2020 20:21 Anonyme THE ISAAC FOUNDATION 1 000,00 $
19 mai 2020 20:18 Becca Pollard THE ISAAC FOUNDATION 50,00 $
Love & hugs to you all!
19 mai 2020 18:25 David Angus THE ISAAC FOUNDATION 245,00 $
Let’s do this! We love you Simon!
19 mai 2020 18:18 Sharilynn Wardrop THE ISAAC FOUNDATION 50,00 $
Happy Birthday S and I! More effective treatments leading to a cure would be such an amazing gift!
19 mai 2020 18:18 Lisa Bosdet THE ISAAC FOUNDATION 25,00 $
We are rooting for you Simon and the whole MPS family!!
19 mai 2020 18:12 Katherine Barry THE ISAAC FOUNDATION 44,00 $
Happy birthday Simon and Bella!
19 mai 2020 17:27 Sydney Martin THE ISAAC FOUNDATION 40,00 $
Happy birthday to Simon and Isabel!
19 mai 2020 17:10 Anonyme THE ISAAC FOUNDATION 25,00 $
Happy Birthday, Simon!
19 mai 2020 16:52 Sarah Cumming THE ISAAC FOUNDATION 50,00 $
Love you dude!
19 mai 2020 16:25 patricia Mast THE ISAAC FOUNDATION 250,00 $
We love you guys.??????
19 mai 2020 16:10 Lovisa Anderson THE ISAAC FOUNDATION 50,00 $
Happy birthday Simon & Isabel ??
19 mai 2020 16:09 Trisha White THE ISAAC FOUNDATION 100,00 $
Happy birthday Izzy and Simon ??
19 mai 2020 15:48 Becs Hoskins THE ISAAC FOUNDATION 150,00 $
Happy Birthday you two crazy kiddos! We love you to infinity and beyooooond! xoxo
19 mai 2020 15:39 William Cumming THE ISAAC FOUNDATION 100,00 $
Love from Grandad