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Canadian FOP Network

Dénomination enregistrée : Canadian FOP Network

Numéro d'entreprise : 834338691RR0001

Canadian FOP Network

À propos

Our Mission

To increase awareness and raise money to fund research to find disease modifying therapies and a cure for Fibrodysplasia Ossificans Progressiva (FOP).

About Canadian FOP Network

Established in 2008 by parents of children with FOP, we are a 100% volunteer operated Canada-wide organization. Our network is committed to enhancing the lives of individuals with FOP and their families.

What is FOP

FOP severely limits mobility. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and preventing movement. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.

ADRESSE DE L'ORGANISME ENREGISTRÉ

P.O. Box 107 Unit #19

13085 Yonge Street

Richmond Hill, ON, L4E 0K2

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