Canadian FOP Network
Dénomination enregistrée : Canadian FOP Network
Numéro d'entreprise : 834338691RR0001
Cet organisme est désigné par l'Agence du revenu du Canada (ARC) comme organisme de bienfaisance enregistré. Ils se conforment aux exigences de l'ARC et ont reçu un numéro d'enregistrement d'organisme de bienfaisance.
Cet organisme de bienfaisance est entièrement configuré sur CanaDon, ce qui permet un traitement des dons plus rapide et l'accès à davantage de fonctionnalités.
Our Mission
To increase awareness and raise money to fund research to find disease modifying therapies and a cure for Fibrodysplasia Ossificans Progressiva (FOP).
About Canadian FOP Network
Established in 2008 by parents of children with FOP, we are a 100% volunteer operated Canada-wide organization. Our network is committed to enhancing the lives of individuals with FOP and their families.
What is FOP
FOP severely limits mobility. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and preventing movement. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.
ADRESSE DE L'ORGANISME ENREGISTRÉ
P.O. Box 107 Unit #19
13085 Yonge Street
Richmond Hill, ON, L4E 0K2
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