At Fragile X Canada, we believe in the power of community, collaboration, and hope.

For over 25 years, we’ve been dedicated to transforming the future for individuals and families living with Fragile X Syndrome, the leading inherited cause of intellectual disability and autism. Fragile X Syndrome is a genetic condition that impacts learning, behavior, and development, yet every individual brings unique strengths and potential.

Together, we can turn hope into action and make a lasting difference.

Our mission

Goes beyond raising awareness, it’s about creating real change. We connect families, researchers, and clinicians to foster innovative collaborations, provide critical resources, and inspire groundbreaking research. Together, we’re shaping a future where every individual impacted by Fragile X has the support, opportunities, and care they deserve.

When you support the Fragile X Research Foundation of Canada, you’re not just donating, you’re investing in hope. You’re helping families navigate today’s challenges while fuelling the discoveries that will lead to brighter tomorrows. Join us in building a legacy of resilience, connection, and progress for the Fragile X community.

Your contribution matters now more than ever.

About Fragile X 

Approximately 1 in 7,000 males and 1 in 11,000 females are affected by Fragile X Syndrome.

Fragile X Premutation Carriers:

Approximately 1 in 250 women and 1 in 800 men are carriers of the Fragile X premutation.