par THE SANFILIPPO CHILDREN'S RESEARCH FOUNDATION
The Linton family (Randall, Elisabeth, Connor, Jessica & Cameron Mason) will be cycling 350 km over 6 days through the hills and valleys of Ireland this coming September in memory of Elisa who passed away from Sanfilippo syndrome almost one year ago at the age of 22. After 18 years of raising awareness and funds for research, the Linton's are still committed to funding research to find therapies to help Sanfilippo children and bring hope to their families. Please help Elisa's legacy continue to shine.
Our goal from this ride is to raise $50K to put towards The SCRF's commitment of $1 million to Sainte Justine Children's Hospital in Montreal Quebec to establish The SCRF Endowment Fund at The Elisa Linton Sanfilippo Research Laboratory. Dr. Alexey Psyhezhetsky and his team there have dedicated over 15 years towards research and have contributed significant findings, moving us towards therapies for Sanfilippo syndrome. This endowment fund will establish a world leading research lab in Canada for Sanfilippo syndrome which will continue indefinately.