Ride For A Cure - Ireland 2017

par THE SANFILIPPO CHILDREN'S RESEARCH FOUNDATION

  • mardi, 01 août 2017 de 8:00 Matin à dimanche, 31 décembre 2017 11:59 Après-midi (HNC)

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Aperçu

The Linton family (Randall, Elisabeth, Connor, Jessica & Cameron Mason) will be cycling 350 km over 6 days through the hills and valleys of Ireland this coming September in memory of Elisa who passed away from Sanfilippo syndrome almost one year ago at the age of 22.  After 18 years of raising awareness and funds for research, the Linton's are still committed to funding research to find therapies to help Sanfilippo children and bring hope to their families.  Please help Elisa's legacy continue to shine.

Détails

Our goal from this ride is to raise $50K to put towards The SCRF's commitment of $1 million to Sainte Justine Children's Hospital in Montreal Quebec to establish  The SCRF Endowment Fund at The Elisa Linton Sanfilippo Research Laboratory.    Dr. Alexey Psyhezhetsky and his team there have dedicated over 15 years towards research and have contributed significant findings, moving us towards therapies for Sanfilippo syndrome.  This endowment fund will establish a world leading research lab in Canada for Sanfilippo syndrome which will continue indefinately.  

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1 août 2017
mardi, 1 août 2017 8:00 Matin (HAC)

Organisateur

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The Sanfilippo Chidlren's Research Foundation
41 Gwendolen Ave.
Toronto , ON
M2N 1A1

À propos de cet organisme

The SCRF is a grass roots charity in Canada started by the Linton family in 1999 when their daughter Elisa was diagnosed with Sanfilippo syndrome at the age of four. The organization is run by volunteers where 96 cents of every dollar donated has been committed to research. The SCRF has raised over $7 million and sponsored research projects in 6 different countries with the hopes of finding therapies for children afflicted with this disease. The SCRF was a significant contributor to the first ever gene therapy clinical trials commencing in North America for Sanfilippo syndrome (MPS lll A & B) last year. Our goal now is to establish a leading research lab here in Canada that will further the understanding and treatment of Sanfilippo disease and continue to bring hope to families with children afflicted with this disease.