Canadian FOP Network
Registered Name: Canadian FOP Network
Business No: 834338691RR0001
This organization is designated by Canada Revenue Agency (CRA) as a registered charity. They comply with the CRA's requirements and have been issued a charitable registration number.
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Our Mission
To increase awareness and raise money to fund research to find disease modifying therapies and a cure for Fibrodysplasia Ossificans Progressiva (FOP).
About Canadian FOP Network
Established in 2008 by parents of children with FOP, we are a 100% volunteer operated Canada-wide organization. Our network is committed to enhancing the lives of individuals with FOP and their families.
What is FOP
FOP severely limits mobility. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and preventing movement. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.
REGISTERED CHARITY ADDRESS
P.O. Box 107 Unit #19
13085 Yonge Street
Richmond Hill, ON, L4E 0K2
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