CURESPG50
Registered Name: CureSPG50
Business No: 796890531RR0001
This organization is designated by Canada Revenue Agency (CRA) as a registered charity. They comply with the CRA's requirements and have been issued a charitable registration number.
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A CURE IS WITHIN REACH! CureSPG50 is working to create a gene therapy that will change the lives of children living with SPG50.
A CURE IS WITHIN REACH
SPG50 is a progressive brain disorder that begins in early childhood, it is caused by just one missing protein and there are only 61 documented cases worldwide. This missing protien, causes a rapid progressive degeneration of the brains ability to function normally. Individuals affected by SPG50 may never gain the ability to walk or speak, their brain will have limited function and they will never be given the chance to have any sense of independence. It has been referred to as progressive cerebral palsy, children that do develop the ability to walk end up in wheelchairs by the age of 10.
Our goal is to raise $3 million dollars, to give children affected by SPG50 their rightful chance at a full life. Gene therapy, a revolutionary new approach to treating genetic diseases, may provide the cure these children desperately need. Researchers are in the final stages of developing the first gene therapy clinical trial.
Thank you For helping us save our children!
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