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Ataxia Charlevoix-Saguenay Foundation

Registered Name: FONDATION DE L'ATAXIE CHARLEVOIX-SAGUENAY

Business No: 856980321RR0001

Ataxia Charlevoix-Saguenay Foundation

about

Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay is a debilitating and hereditary progressive childhood neurological disorder.

Symptoms generally appear between the ages of 2 and 5 years old. Already at that age, the child’s motor skills are affected. The disorder progresses throughout the adolescence and adulthood (stiffness in the legs, increasing difficulty in walking to the use of a wheelchair). Ataxia affects the spinal cord and the peripheral nerves.

The name of the disorder refers to the Charlevoix-Saguenay regions located in the Province of Quebec (Canada) only because it was first discovered and described by doctors from the Province of Québec. 

Even though initially more frequent in those regions, ARSACS cases have been identified around the world.  ARSACS is the second most common recessive ataxia after Friedrich’s ataxia.

REGISTERED CHARITY ADDRESS

2100 - 1000 RUE SHERBROOKE O

MONTREAL, QC, H3A 3G4

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