The Manitoba Neurofibromatosis Support Group is a registered not-for-profit organization dedicated to improving the lives of individuals and families affected by neurofibromatosis (NF).

Neurofibromatosis (NF) is a term for three distinct disorders: NF1, NF2, and Schwannomatosis.  NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.  

NF affects one in every 3,000 people, more than cystic fibrosis, Duchene muscular dystrophy, and Huntington’s disease combined.

Mission

The Manitoba Neurofibromatosis Support Group is committed to enabling and enriching the lives of individuals and families affected by Neurofibromatosis.  MBNF provides information and support services, promotes awareness and aims to fund research to improve treatment and find a cure.

Vision Statement

The Manitoba Neurofibromatosis Support Group envisions lives freed of physical and emotional pain caused by Neurofibromatosis.

Services

• Provide information about NF to members. 
• Provide support to those in need.
• Provide public presentations to schools, healthcare facilities and other community organizations. 
• Host support group meetings and group get togethers.
• Maintain a Website, Facebook and Twitter account.
• Publish an annual newsletter.
• Host a variety of fundraising events.
• Provide opportunities to participate in NF Symposiums and send younger members to a specialized NF Summer Camp.
• Promote the awareness of Neurofibromatosis and our Manitoba Support Group.
• Collaborate with other NF organizations.