Myriad Canada
Montreal, QC
G419 – Help Lily Bloom Fund
About This Campaign
Help Lily Bloom was established in honour of Lily, who is living with an ultra-rare genetic condition caused by a mutation in the CASK gene. Fewer than 600 individuals have been diagnosed with CASK-related disorders worldwide.
CASK-related disorders are severe neurological conditions that affect brain development and can impair movement, coordination, communication and other essential functions. There is currently no cure or approved treatment targeting the underlying genetic cause of these disorders.
Two promising gene therapy research programmes are exploring complementary approaches to address the genetic cause of CASK-related disorders. Both are currently at the preclinical stage, where further research is required to establish their safety, optimal dosing and effectiveness before clinical trials can be considered.
Why CanadaHelps
Why donate to Myriad Canada on CanadaHelps?
About CanadaHelps
We're a registered charity that provides simple and convenient tools to manage your charitable giving to any Canadian charity of your choice.
Where Your Gift Goes
Charities that set up to receive electronic funds transfers from us will receive your donation quickly, so it can be put to work faster.
Tax Benefits of Donating
Get an instant tax receipt, manage all your tax receipts in one place, and make a difference while maximizing your tax credits with ease.