Quebec Coalition of Orphan Diseases

Registered Name: Regroupement Québécois des maladies orphelines

Business Number: 812655603RR0001

RARE AND ORPHAN DISEASES

INFORM - SUPPORT - RAISE AWARENESS - EDUCATE - HELP RESEARCH

Individual help: we offer information, support and resources to people with a rare disease, their caregivers and health professionals through our

                                                             IRARE CENTER

. We share information on rare diseases and issues surrounding them.

. We raise awareness about rare and orphan diseases in the population and the  medical community.

. We help advance knowledge on the various rare diseases by building links  between patients and researchers.

What People Are Saying

"I did some research and found your grouping. It was a relief for me. A relief that there is a group of parents / people who can feel supported and accompanied in this difficult ordeal."

— Skye's mother, Read More

"It took seventeen (17) years to know my diagnosis. I had several melanomas, a mastectomy, a thyroidectomy, a hysterectomy and hamartomas in the head that trapped nerves in my face. And, I have chronic pain."

— Amélie, 30 years old, suffering from Cowden syndrome, Read More

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