RARE AND ORPHAN DISEASES
INFORM - SUPPORT - RAISE AWARENESS - EDUCATE - HELP RESEARCH
What we do:
. Offer information, support and resources to people affected by a rare disease, to their caregivers and to health professionals through our
. Share information on rare diseases and issues surrounding them.
. Raise awareness about rare and orphan diseases in the population and the medical community.
. Help advance knowledge on the various rare diseases by building links between patients and researchers.