SCLERODERMA ASSOCIATION OF B.C.

Registered Name: SCLERODERMA ASSOCIATION OF B.C.

Business Number: 134221894RR0001

Our Mission

The Scleroderma Assn of BC was founded in 1984 with a three fold mission: to promote patient outreach, support and education; to raise public awareness and understanding of scleroderma; and to encourage and support scleroderma research in BC and Canada.

About SCLERODERMA ASSOCIATION OF B.C.

Scleroderma, also called Systemic Sclerosis, is a rare chronic autoimmune disease of the connective tissue. Symptoms may be visible, as when the skin is affected, or invisible (when only internal organs are involved) or a combination of both. Characterized by unusual fibrotic processes resulting from increased production and deposits of collagen in the skin, the name Scleroderma derives from the Greek skleros (hard) and derma (skin). First reported in the mid-1700's, it remains difficult to diagnose. There is no known cure. Thanks to recent strides in research, more options now exist in many areas of symptom management. Symptoms of scleroderma may include one or more of the following:

Raynaud's Phenomenon(abnormal sensitivity to cold)

Swelling of the hands and/or feet

Pain and stiffness in the joints

Thickening of the skin, joint contractures

Digestive system and gastro-intestinal tract problems

Oral, facial, and dental problems

Kidney, heart, and lung dysfunction

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