Soft Bones Canada is a source of education, information, encouragement, and support for Canadian individuals and their families affected by HPP, including interested individuals in the medical community. SBC’s purpose is:
(a) To advance education by providing courses, seminars, workshops, and educational materials about Hypophosphatasia to the public, patients and medical professionals;
(b) To promote health by providing Hypophosphatasia patients and their caregivers with access to health counselling, information, and group support programs;
(c) To advance education by supporting and conducting research into the causes and possible treatments of Hypophosphatasia and making the results publicly available.
HPP is a condition that affects healthy development of bones and teeth, making bones softer and more likely to fracture. People who have HPP have trouble making an enzyme called alkaline phosphatase, or ALP. Without this important ALP enzyme, certain chemicals build-up and prevent calcium and phosphorus from binding together and depositing in the bones. As a result, bones can become soft, curved and fragile, and teeth may become loose or fall out prematurely.