There is NO CURE for MPS.  There are few treatments, this toxic cellular waste collection is just like Dementia and ALS in adults, and sneaks up on our children.  If all provinces in Canada had MPS on their newborn screening panels we would be able to catch and treat earlier - treat - not cure.  Treating earlier means a better quality of life, but this disease doesn't ever go away.  It's in the cellular structure, slowing it's progression is all that can be done currently.

Our organisation helps families from diagnosis to end of life and beyond.  We are there to help inform, advocate, build community and end isolation.  The research community is working hard to find ways to cure, we help by asking for donations in research funding and providing it to researchers.  We know who they are and can help distribute and do quality checks along the way.

The families we serve are in SHOCK, they have been hit hard with a trauma of everyday living and can not see the forest for the trees.  Our support helps bring them information without having to search and inform when new clinical trials are on the horizon.

We spend less than 5% on our operational costs.  We are virtual so we can be anywhere in the country when needed.  We travel to regions and host get togethers in person so that families can build local community support.  We connect families via virtual meetings so people in remote locations do not feel isolated.

Help us deliver our mission.  To ensure that every person affected by MPS lives their best life.