EDS Canada Foundation
Registered Name: The ILC Charitable Foundation
Business No: 809911068RR0001
This organization is designated by Canada Revenue Agency (CRA) as a registered charity. They comply with the CRA's requirements and has been issued a charitable registration number.
To help Canadians overcome the challenges of living with Ehlers-Danlos Syndromes and related conditions, including chronic pain.
EDS Canada Foundation is a CRA registered charity serving the Canadian Ehlers-Danlos Syndromes (EDS) and chronic pain community. We are the national advocate for those affected by this hereditary and difficult disease. Established in 2010, we have worked collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by EDS have access to the latest advances in care.
By engaging in activities aligned to EDS Canada Foundation's core programs (community support, research and awareness), we work towards:
- Developing patient education and bring patients together in peer-to- peer groups
- Granting research funding requests and facilitating grant requests for external research funding
- Increasing awareness of EDS throughout annual campaigns and activities in Canada
- Advocacy
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