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VHL Canada

Registered Name: VHL Canada

Business No: 800804676RR0001

Von Hippel-Lindau Syndrome (VHL) is a rare genetic disease and cancer syndrome that can result in tumors in 10 areas of the body.

VHL Canada


September 2022, NOTE: Please use the online method if possible. Our PO Box is not available, and our temporary mailing address is:

VHL Canada

C/O: H. Seo

618 Gladstone Avenue

Toronto ON, M6J 3H4

or email us:

Thank you

VHL Canada is an active support network for and by Canadian VHL patients and their families. Started in 2016 to fill a gap, we're a small registered charitable group that is run by volunteers including a permanent professional-level national Peer Support Volunteer.

VHL "is a rare genetic disease characterized by the growth of both benign and cancerous tumours in several parts of the body... It is not only a medical journey, VHL has logistical and emotional impacts on the lives of both the patients and everyone around them..." More

VHL can reoccur throughout someone's lifetime and can start in childhood. "The mean age of onset is 26 years and 97% of people with a VHL gene mutation have symptoms by the age of 65. VHL disease affects males and females and all ethnic groups equally, and occurs in all parts of the world..." -NORD

There are 900+ people with VHL in Canada (1/36,000 estimate)

A gift of any amount will help us sustain essential services for VHL patients as well as their families.


2938 Dundas St.W.

PO Box 70510


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