Dénomination enregistrée: BETHANYS HOPE FOUNDATION

Numéro d'entreprise: 887374833RR0001

Our Mission

Bethanys Hope Foundation is committed to:

• Conducting research into the cause,

control and cure of MLD.

• Undertake public education and

publication about MLD.

• Continue to give “Hope” to children

and their families who suffer with

the devastation of Leukodystrophy.


Following Bethany's diagnosis in August 1995 of Metachromatic Leukodystrophy (MLD), Lindey & Dave McIntyre recognized that her only hope was research! A Board of Directors was established and the Foundation was incorporated in the Province of Ontario as a Non-Profit Public Foundation - 1171240 on July 26th, 1996 and became a Registered Canadian Charity on January 1st, 1998, 88737-4833-RR0001. They opened "Bethanys Hope Leukodystrophy Research Laboratory" on November 5th, 1999 in London, Ontario. This research facility is under the direction of Dr. Tony Rupar of the University of Western Ontario.

Over the last sixteen years they have combined their talent and energy to execute two additional major lotteries, fourteen Charity Gala events, a multitude of charity golf tournaments and eight “Rock the Park” Classic Rock Festivals. They are well on the way to reach another milestone… $4 million Research dollars for this non-stop search for the ultimate goal... the cure !

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