BETHANYS HOPE FOUNDATION
Dénomination enregistrée : BETHANYS HOPE FOUNDATION
Numéro d'entreprise : 887374833RR0001
Cet organisme est désigné par l'Agence du revenu du Canada (ARC) comme organisme de bienfaisance enregistré. Ils se conforment aux exigences de l'ARC et ont reçu un numéro d'enregistrement d'organisme de bienfaisance.
Our Mission
Bethanys Hope Foundation is committed to:
• Conducting research into the cause,
control and cure of MLD.
• Undertake public education and
publication about MLD.
• Continue to give “Hope” to children
and their families who suffer with
the devastation of Leukodystrophy.
About BETHANYS HOPE FOUNDATION
Following Bethany's diagnosis in August 1995 of Metachromatic Leukodystrophy (MLD), Lindey & Dave McIntyre recognized that her only hope was research! A Board of Directors was established and the Foundation was incorporated in the Province of Ontario as a Non-Profit Public Foundation - 1171240 on July 26th, 1996 and became a Registered Canadian Charity on January 1st, 1998, 88737-4833-RR0001. They opened "Bethanys Hope Leukodystrophy Research Laboratory" on November 5th, 1999 in London, Ontario. This research facility is under the direction of Dr. Tony Rupar of the University of Western Ontario.
Over the last sixteen years they have combined their talent and energy to execute two additional major lotteries, fourteen Charity Gala events, a multitude of charity golf tournaments and eight “Rock the Park” Classic Rock Festivals. They are well on the way to reach another milestone… $4 million Research dollars for this non-stop search for the ultimate goal... the cure !