Who We Are

The Ontario Rett Syndrome Association (O.R.S.A.) exists to ensure that children and adults with Rett Syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. We are a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. The association funds Canadian research projects, three Rett syndrome clinics and developed the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.