Association ontarienne du syndrome de Rett du Canada
Dénomination enregistrée : ONTARIO RETT SYNDROME ASSOCIATION
Numéro d'entreprise : 890178999RR0001
Cet organisme est désigné par l'Agence du revenu du Canada (ARC) comme organisme de bienfaisance enregistré. Ils se conforment aux exigences de l'ARC et ont reçu un numéro d'enregistrement d'organisme de bienfaisance.
Who We Are
The Ontario Rett Syndrome Association of Canada (ORSA Canada) exists to ensure that individuals with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. We are a volunteer, non-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. The association funds Canadian research projects, Rett syndrome clinics in Ontario and developed the Canadian Rett Syndrome Registry. ORSA Canada advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.