Epidermolysis bullosa (EB) is a group of genetic conditions that result in easy blistering of the skin and mucous membranes. It is estimated to affect 500,000 people worldwide. Children born with this disease are often called “Butterfly Children”, since their skin is as fragile as the wings of a butterfly.

MiaThrives is working to make sure they will live their life knowing others who have EB and the people around them will know more about EB than ever before. This generation will have role models they can look up to, and form life-long friendships within our EB community. The emotional connections and companionships they will know, will strengthen their lives and help them form personal goals and achievements. At MiaThrives, we believe (that no matter how bad the disease is) everyone thrives when they feel connection and belonging. This generation of Butterly Children will live inspirational lives full of purpose.

MiaThrives is a registered charity dedicated to supporting the emotional needs of Canadian children living with Epidermolysis Bullosa (EB). Our goal is to empower this generation of Butterfly Children to enjoy a social life filled with friendship, inspiration, belonging, and purpose rather than one lived in shame and isolation.